This is a very real problem for Jenn Hooper and her daughter Charley, 19, who has profound and complex disabilities that require full-time care and support.
“I’ll never see my daughter laugh, talk or move. She breaks my heart every damn day. But for a kid that can't move or see or speak, she has changed more lives than anybody I know,” says Jenn.
Charley was the inspiration behind the charity Changing Places New Zealand, which Jenn founded in 2017 to ensure there were fully accessible toilets in Aotearoa for families like hers.
“Changing Places provides equipment that allows families to leave the house. Imagine if the only toilet and bathroom you could use was the one in your home. You’d be restricted to only going out for a couple of hours in your local neighbourhood, and even then you’re taking a risk,” Jenn explains.
“In our case if a hygienic change is required, you’re faced with laying your loved one on the floor of a public loo or the backseat of your car, assuming they’re still small enough to lift. It’s either that or rush home with them in discomfort. That’s why so many of us end up staying at home.”